The number of new cases of Huntington’s disease in the U.S. has doubled since 2009.
That’s a big deal for families.
We’ve been talking about the rise in Huntington’s cases since the beginning of this year.
And we think the numbers are going to continue to increase.
That means that we’re going to have to make decisions on where and how to treat patients.
Huntington’s patients, including those who are diagnosed with the disease before they’ve had the disease, are at greater risk of developing complications and death, according to a recent study published in The Lancet.
Huntington is a genetic disorder characterized by the buildup of plaques in the brain.
People who have it typically have higher levels of the protein, HLA-B27, that helps protect against the disease.
The protein helps the brain to repair damaged nerve cells.
But a lot of patients with Huntington’s don’t have the protein.
It can accumulate in the body.
That, in turn, can cause a condition called Lewy bodies, in which abnormal blood vessels and arteries become clogged and can cause stroke or brain damage.
It’s also known as cerebral palsy, but it affects more people.
The more people who have Huntington’s, the more likely they are to develop complications from the disease such as kidney failure and heart problems, according a 2016 study published by the American College of Physicians.
In Huntington’s families, the diagnosis can be hard, especially for young children and adults.
Huntington disease affects one in 100,000 Americans, according the Centers for Disease Control and Prevention.
But the symptoms are often difficult to distinguish from the more common forms of the disease known as progressive multifocal leukoencephalopathy, or PML.
Patients often don’t know what they have.
Huntington patients are often diagnosed at an early stage and are told to go to a specialist for tests or follow up with doctors.
But that often isn’t the case for people who haven’t yet had symptoms.
“If you don’t find out, it’s very hard to get a diagnosis,” said Dr. John R. Brown, an infectious disease specialist at Johns Hopkins Children’s Center in Baltimore.
For some, this is an especially painful experience.
Brown said some Huntington patients don’t even realize they have the disease until they have a stroke or heart attack.
“When they get to the hospital, they can’t understand what’s going on,” he said.
Brown has seen some patients who are already in the ICU for heart attacks.
“There are days when I feel like my head is going to explode,” he recalled.
But sometimes patients with the Huntington’s genetic condition have a positive test result and get to a hospital in time to receive the appropriate treatment.
“It’s very important that they know that there’s a very good chance that they will get a good outcome from a positive HLA test,” Brown said.
But some patients with a positive result are not told they have Huntington, even if they have signs and symptoms that may suggest a genetic condition.
And patients can have some trouble getting care if they are still in the hospital and unable to speak.
Some Huntington patients do receive some care, but they’re often told that they’re not receiving it.
For example, some patients are told they can get dialysis.
But because it can be difficult to find a provider who is willing to treat a patient with Huntington, they often go without it.
Some patients have been told that if they go to the specialist, it will be hard to treat them because they’ll need to have a follow-up visit to confirm a diagnosis.
“They can have a bad day when they don’t get the help they need,” said Brown.
“I just don’t understand why that happens.”
One of the biggest challenges for the Huntington community is figuring out what treatment options are available.
A good first step is to talk to your doctor and ask what treatments you’re going through right now.
You may need to be monitored more closely, and you may need more medication.
But this is also a good time to talk with your family and friends about the possible treatment options, Brown said, noting that most patients can be treated in an outpatient setting.
“Some of the medications are very good at treating Huntington, but the treatment options for Huntington patients vary by age,” he explained.
“We have patients ages 20 to 70 who are on anti-retroviral therapy, which is one of the most common treatments for Huntington’s.
They’re going for about four to five different things, and they can be very effective.”